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Data requests

Data requests

As can be seen from the research showcased in this section, our aim is for SSNAP data to be used as widely as possible to improve the quality of care for people with stroke.

The Healthcare Quality Improvement Programme (HQIP) are the data controllers for SSNAP, and as such, it is HQIP who would assess whether we can provide this SSNAP data. Initially, please complete a SSNAP data request form. We provide two types of data from SSNAP and therefore two different forms (available to download below). It is essential that the anonymity of the people included in the database is protected and that the data are used in an ethical way. 
 
Aggregate data – data at the level of an individual hospital or team. For aggregate data that is not already published publicly, researchers will need to fill in the “Aggregate data request form”.

Download aggregate data request form

Anonymous patient level data – data at the level of individual patient but does not include any personal information, such as name, data of birth, address or NHS number. Researchers will need to complete the “Patient level application form".
 
Download patient level application form

In this form you provide details of the research, including the context, methodology, funding, and researchers involved in the project. Once the Stroke Programme receives this form we will consider if it is technically sound and whether we have sufficient information to proceed with the request process. Please note that form review is currently taking at least 6-8 weeks. 

If it is accepted you will then need to complete a reuqest to HQIP by completed and submitting both a Data Sharing Agreement and Data Access Request form (DARF) to be considered by the Data Access Request Group (DARG) to HQIP. The form is available to download from the HQIP data sharing webpage. This form must first be returned to SSNAP for consideration and signing, before it is then submitted to HQIP.

Further information is available on the HQIP data sharing webapge, including a document produced by HQIP providing guidance for applicants.  

The Data Access Request Group (DARG) at HQIP meet once every month to consider each application. Details of the meeting, submission deadline and outcome dates are available here. Please be aware that if the applications are successful, there will be fees attached to the data sharing.

If you have further preliminary queries regarding your data request, such as discussing the consent form, we recommend you contact HQIP directly by emailing datasharing@hqip.org.uk.

If you have any questions for SSNAP, please contact ssnapdatarequests@kcl.ac.uk. 
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